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The most important thing in life is to learn how to give out love, and to let it come in.

Sunday, July 10, 2011

Parent and Patrick progress:)

So much has happened so much needs to be said! To start since we left Ecuador in November a major miracle has occurred. When Patrick turned three the school board convinced us Patrick should attend school. Very quickly we learned of another aspect of his vaccine injury and why he hadn't gained weight for three years; Patrick has an immunoglobulin A deficiency. Immunoglobulin A coats the digestive & respiratory track like a mucus which protects the tissue linings. We found out about this part of his injury and spent the next 6 months in and out of hospitals, a stomach tube, bleeding ulcers, severe constipation and many a bad day. But after this last trip to Ecuador we were given a miracle.
Because of internal upper gastric bleeding Patrick has always had black bowel movements. Within 24 hours of his treatment Patrick had bowel movements of enormous size and normal color. When we returned home a few days later the hole where his stomach tube had been oozed and we were petrified. This in fact was healing!!! For the eight months since his second treatment Patrick has had no sign of upper gastric bleeding and has had NO CONSTIPATION. To your normal parent the response is so what? To the parent of a handicapped child that bites his hands, refuses to eat, and screams in pain it means everything. At first my husband kept asking is there something different in his diet? And I kept saying no praying this was permanent but afraid to think so. After 8 months I know this is permanent.
People expected Patrick to come home and run or talk. I am satisfied with him being comfortable and laughing when he goes to the bathroom. We spent 14 years with suppositories, enemas, crying, and torture. Not so long ago Patrick accepted that the suppository would make him feel better and didn't fight back. Today he has a bowel movement and belly laughs afterwards.
For most this is an awkward conversation but for the parent of a child that doesn't have the physical capability of the most simple bodily functions it is a miracle. Quality of life is everything and I will continue on my quest to make sure my beautiful son is as comfortable and happy as possible.
I look forward to my next adventure and our next trip:) for healing!!

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