Friday, April 30, 2010
Jack- I replied under comments - did you see this?
Hi Jack, You need to go or you will never forgive yourself for letting the opportunity slip away. The procedure was very quick and noninvasive and believe me I was letting my nerves get the best of me too. If you would like to talk at length email me your phone number to thepatrickfrenchfoundation@gmail.com and we can talk. Jacki
Tuesday, April 27, 2010
Nobody is going to believe this one!!!!!
Okay anyone who has ever been around Patrick knows we have worked for 13 years trying to get him on his belly to strengthen his upper body. Well around a year ago he started rolling onto his belly with less fear (his gastric history made him afraid and sometimes this could be painful) but would quickly turn over if anyone got anywhere near him. This afternoon I was physically trying to force him to roll off his belly and he was deliberately fighting me and laughing. He is so strong I could not roll him over!!!!! I wonder what his next surprise will be???
Sunday, April 25, 2010
Life is so Good!!!!!!!!!!!!!!!!
Patrick just raised his hands 3 times to catch a ball!!!! He has been throwing balls forever but never ever ever attempted to bring his hands midline to catch!!!!!!!!!!!!!!!!!!! He also used his arms to raise his body and adjust himself in his seat!! God is great and so are the wonderful doctors of ECuador! Now I need to stop crying and go cater 271 people!!!!!
Wednesday, April 21, 2010
Somethings going on
Walked the marathon of hallway marathons last night! Patrick was very hyper and didnt go to bed til after midnight and then woke up at 5am just sitting there laughing at the top of his lungs for an hour. His eyes are moving all over the place like he has never seen before. I hope as the day continues we see more and more but he definitely is more aware and alert than normal. Check up at 11am and hoping for more good news!!!! We miss all of you!
Tuesday, April 20, 2010
The worst that can happen is nothing the best that can happen is eveything
Hi everyone,
Today the procedure went well but Patrick is still agitated from the anesthesia. Tomorrow will be a better day for both of us; just relieved that the procedure went well and he is safe. Today a man with Parkinsons we met 2 days ago before his treatments ran down the hallway; he was unable to walk without assistance when we arrived. I hope Patrick will receive such a miracle. Thank you for all the prayers and keep them coming!!! Love all of you!!!!
Today the procedure went well but Patrick is still agitated from the anesthesia. Tomorrow will be a better day for both of us; just relieved that the procedure went well and he is safe. Today a man with Parkinsons we met 2 days ago before his treatments ran down the hallway; he was unable to walk without assistance when we arrived. I hope Patrick will receive such a miracle. Thank you for all the prayers and keep them coming!!! Love all of you!!!!
Monday, April 19, 2010
We are Here!!!!!!
Hi everyone, we are in Quito Ecuador!!!! Flew all day Sunday and today we went for his exam to clear him for the procedure tomorrow. Patrick is in great shape and almost beat up two of the six doctors. So tomorrow at 11:30am we get picked up and the procedure begins at 12:30 so that's when the prayers have to go out in force!!!! We will never be able to thank everyone enough for giving us this opportunity and the support both monetary and emotionally. All of you have shown us how much you care and how much you think about Patrick. Thank you for loving him and helping us take care of him. On a different note we have a few American women worried that Patrick will fall in love with Ecuadorean boobs but so far he has found none to compare to his American favorites but we will keep you posted on how that develops also!!! News will continue each day!
Love all of you!!!!
Love all of you!!!!
Thursday, April 8, 2010
The Patrick French Foundation
Tax ID # 22-3730861
The Patrick French Foundation founded in April of 2000 is celebrating 10 strong years of providing Patrick and other children with needs not met through conventional medical pathways and expenses not covered by insurance. Those of you that have followed the course of Patrick’s life know that this has not been an easy road.
At the age of 6 months Patrick a fat healthy 21 pound boy suffered a severe allergic reaction to the DTaP vaccine. Struggling for his life he was now cortically blind, unable to eat, and his body was akin to a rag doll. On his third birthday Patrick was lucky enough to participate in a study at Cornell University which proved life changing. The Hyperbaric oxygen treatments he received began to renew his vision, ease the conflicts in his tiny body and he started to regain some strength.
After placing him in Children’s Specialized Hospital School once again his life was traumatized. After only 19 days, 2 infections, and 2 rounds of antibiotics Patrick endured 6 months of agony. A stomach tube was inserted as he screamed in pain from bleeding ulcers caused by Xithromax. It was at this point that we left Beth Israel Hospital determined to end Patrick’s pain. Patrick was now 3 ½ years of age and still a frightening 21 pounds!
The foundation was established and our first mission was more hyperbaric oxygen. Since then Patrick has received we’ll over 500 treatments at $200/hour, has been on a hypoallergenic diet costing several hundred dollars/month, received the best equipment including three bicycles costing in excess of $10,000, and thrives. His progress has been slow but steady as most of you have witnessed. Today Patrick is a healthy low functioning thirteen year old and ready to once again be brave and take the next step.
Patrick and I are seizing an opportunity we can not pass up and spending money we don't have yet because of the potential it can have on his future. Stem cell research as it is in this country has major side effects such as cancer due to the fact that they use other peoples cells and the chance of infection and rejection is serious. At the American Stem Cell and Anti-aging Center in Ecuador they are doing a procedure similar to a bone marrow transplant. They transfuse the child's own blood, remove the stem cells remaining in the child's body, replicate the child's own stem cells with human growth factor, and reintroduce the child's own stem cells in mass back into their body. Because of Patrick's Immunoglobulin A deficiency, the risk of an allergic reaction or rejection has always been in our way with stem cells. Reintroducing his own cells can cause no harm only good.
This procedure mimics the bone marrow transplant used for 28 years for leukemia, and the 6 year old procedure to alleviate pain for rheumatoid arthritis. Stem cells are the cells that replicate after fertilization. They are undifferentiated; they can become anything. They are not skin cells, heart cells, bone cells, etc. They can however become any of these cells. The potential for healing has proved to cure Sickle Cell Anemia, and many other diseases specifically an immune deficiency such as Patrick's IgA deficiency that is incurable otherwise. Stem cells are like heat seeking missiles within the body and search for damaged tissues and repair them. The uses are limitless and the potential for this therapy to help Patrick is endless.
Maybe he would walk unattended, maybe he could eat non-medical food, maybe he could say a few simple words or actually make eye contact. We have no idea but the results with other individuals have all been positive and I refuse to let this opportunity slip away, The therapy costs $18,000 and the travel expenses are around $2,000.00.
So on April 18th yes April 18th Patrick and I embark on our next quest for healing. Patrick deserves this chance and has needed that little nudge for so long. When he says "MOM' I cry because I know he wants to say so much more. He constantly moves his jaw talking with no words.
We have been so lucky to have so many wonderful supporters that have kept him going all these years and our dream is to get him one step further than we have so far; get him to communicate enough for him to always be happy. So on to Ecuador it is for me and Patrick!!!
When we return Patrick needs many new pieces of equipment including a new wheelchair, ankle braces and handicapped van. His continued growth is truly amazing. We would also again like to reach out to another child and help him or her through their struggles by providing a service .
The web site for our destination is http://www.ascaac.com/ for those that are interested in viewing. Thanks again for being a Patrick supporter.
Jacki & Tim French
Tax ID # 22-3730861
The Patrick French Foundation founded in April of 2000 is celebrating 10 strong years of providing Patrick and other children with needs not met through conventional medical pathways and expenses not covered by insurance. Those of you that have followed the course of Patrick’s life know that this has not been an easy road.
At the age of 6 months Patrick a fat healthy 21 pound boy suffered a severe allergic reaction to the DTaP vaccine. Struggling for his life he was now cortically blind, unable to eat, and his body was akin to a rag doll. On his third birthday Patrick was lucky enough to participate in a study at Cornell University which proved life changing. The Hyperbaric oxygen treatments he received began to renew his vision, ease the conflicts in his tiny body and he started to regain some strength.
After placing him in Children’s Specialized Hospital School once again his life was traumatized. After only 19 days, 2 infections, and 2 rounds of antibiotics Patrick endured 6 months of agony. A stomach tube was inserted as he screamed in pain from bleeding ulcers caused by Xithromax. It was at this point that we left Beth Israel Hospital determined to end Patrick’s pain. Patrick was now 3 ½ years of age and still a frightening 21 pounds!
The foundation was established and our first mission was more hyperbaric oxygen. Since then Patrick has received we’ll over 500 treatments at $200/hour, has been on a hypoallergenic diet costing several hundred dollars/month, received the best equipment including three bicycles costing in excess of $10,000, and thrives. His progress has been slow but steady as most of you have witnessed. Today Patrick is a healthy low functioning thirteen year old and ready to once again be brave and take the next step.
Patrick and I are seizing an opportunity we can not pass up and spending money we don't have yet because of the potential it can have on his future. Stem cell research as it is in this country has major side effects such as cancer due to the fact that they use other peoples cells and the chance of infection and rejection is serious. At the American Stem Cell and Anti-aging Center in Ecuador they are doing a procedure similar to a bone marrow transplant. They transfuse the child's own blood, remove the stem cells remaining in the child's body, replicate the child's own stem cells with human growth factor, and reintroduce the child's own stem cells in mass back into their body. Because of Patrick's Immunoglobulin A deficiency, the risk of an allergic reaction or rejection has always been in our way with stem cells. Reintroducing his own cells can cause no harm only good.
This procedure mimics the bone marrow transplant used for 28 years for leukemia, and the 6 year old procedure to alleviate pain for rheumatoid arthritis. Stem cells are the cells that replicate after fertilization. They are undifferentiated; they can become anything. They are not skin cells, heart cells, bone cells, etc. They can however become any of these cells. The potential for healing has proved to cure Sickle Cell Anemia, and many other diseases specifically an immune deficiency such as Patrick's IgA deficiency that is incurable otherwise. Stem cells are like heat seeking missiles within the body and search for damaged tissues and repair them. The uses are limitless and the potential for this therapy to help Patrick is endless.
Maybe he would walk unattended, maybe he could eat non-medical food, maybe he could say a few simple words or actually make eye contact. We have no idea but the results with other individuals have all been positive and I refuse to let this opportunity slip away, The therapy costs $18,000 and the travel expenses are around $2,000.00.
So on April 18th yes April 18th Patrick and I embark on our next quest for healing. Patrick deserves this chance and has needed that little nudge for so long. When he says "MOM' I cry because I know he wants to say so much more. He constantly moves his jaw talking with no words.
We have been so lucky to have so many wonderful supporters that have kept him going all these years and our dream is to get him one step further than we have so far; get him to communicate enough for him to always be happy. So on to Ecuador it is for me and Patrick!!!
When we return Patrick needs many new pieces of equipment including a new wheelchair, ankle braces and handicapped van. His continued growth is truly amazing. We would also again like to reach out to another child and help him or her through their struggles by providing a service .
The web site for our destination is http://www.ascaac.com/ for those that are interested in viewing. Thanks again for being a Patrick supporter.
Jacki & Tim French
Wednesday, April 7, 2010
The Cranford Elks Saved the Day
There are no words to explain the gratitude and love we feel from all of the Cranford Elks, The Motorcycle club, our great, great friends, and especially TRACY!!!!!!! Knowing all of you are behind us with such enthusiasm and excitement is like having wings with each of you beneath them; keeping us up and keeping us brave. Your prayers and responses to our plea for Patricks trip to Ecuador has been nothing short of overwhelming. We love you and hope that you will keep us in your prayers on our journey to Ecuador!!! Once again thank you for your monetary, emotional, and love felt responses.
The French's
The French's
Letter to a friend
3/15/2010
Patrick and I are seizing an opportunity we can not pass up and spending money we don't have yet because of the potential it can have on his future. Stem cell research as it is in this country has major side effects such as cancer due to the fact that they use other peoples cells and the chance of infection and rejection is serious. At the American Stem Cell and Anti-aging Center in Ecuador they are doing a procedure similar to a bone marrow transplant. They transfuse the child's own blood, remove the stem cells remaining in the child's body, replicate the child's own stem cells with human growth factor, and reintroduce the child's own stem cells in mass back into their body. Because of Patrick's Immunoglobulin A deficiency, the risk of an allergic reaction or rejection has always been in our way with stem cells. Reintroducing his own cells can cause no harm only good.
This procedure mimics the bone marrow transplant used for 28 years for leukemia, and the 6 year old procedure to alleviate pain for rheumatoid arthritis. Stem cells are the cells that replicate after fertilization. They are undifferentiated; they can become anything. They are not skin cells, heart cells, bone cells, etc. They can however become any of these cells. The potential for healing has proved to cure Sickle Cell Anemia, and many other diseases specifically an immune deficiency such as Patrick's IgA deficiency that is incurable otherwise. Stem cells are like heat seeking missiles within the body and search for damaged tissues and repair them. The uses are limitless and the potential for this therapy to help Patrick is endless.
Maybe he would walk unattended, maybe he could eat non-medical food, maybe he could say a few simple words or actually make eye contact. We have no idea but the results with other individuals have all been positive and I refuse to let this opportunity slip away, The therapy costs $18,000 and the travel expenses are around $2,000.00 leaving us with a $20,000.00 plus or minus expense.
The dinner dance paid off old bills and left us with the $2000.00 for travel but we are faced with raising the $18,000.00. Much of this will be raised in June at his annual golf outing but we need to provide the doctor with a sizeable down payment when we land in Ecuador on April 18th. Yes April 18th!!!!! I am scared to death, excited, hopeful, but I know this is the right choice to make. Patrick and I will be traveling alone due to cost, school, etc. so please keep us in your prayers. I know the charity ball is next week so if you could talk to the members of both the club and motorcycle club maybe a small amount of funds could be raised to make a dent in this expense. Patrick deserves this chance and has needed that little nudge for so long. When he says "MOM' I cry because I know he wants to say so much more. He constantly moves his jaw talking with no words.
We have been so lucky to have so many wonderful friends that have kept him going all these years. My dream is just to get him one step further than we have so far; get him to communicate enough for him to always be happy. So on to Ecuador it is for me and Patrick!!! And I thank you and all our other wonderful friends in advance and in the past for all the support both financial and emotional. Attached is a save the date card for Patrick's golf outing and the brochure will follow which can be distributed to everyone wishing to golf or sponsor a hole. The web site for our destination is http://www.ascaac.com/ for those that are interested in viewing. Thanks again for being a great friend and Patrick supporter.
Patrick and I are seizing an opportunity we can not pass up and spending money we don't have yet because of the potential it can have on his future. Stem cell research as it is in this country has major side effects such as cancer due to the fact that they use other peoples cells and the chance of infection and rejection is serious. At the American Stem Cell and Anti-aging Center in Ecuador they are doing a procedure similar to a bone marrow transplant. They transfuse the child's own blood, remove the stem cells remaining in the child's body, replicate the child's own stem cells with human growth factor, and reintroduce the child's own stem cells in mass back into their body. Because of Patrick's Immunoglobulin A deficiency, the risk of an allergic reaction or rejection has always been in our way with stem cells. Reintroducing his own cells can cause no harm only good.
This procedure mimics the bone marrow transplant used for 28 years for leukemia, and the 6 year old procedure to alleviate pain for rheumatoid arthritis. Stem cells are the cells that replicate after fertilization. They are undifferentiated; they can become anything. They are not skin cells, heart cells, bone cells, etc. They can however become any of these cells. The potential for healing has proved to cure Sickle Cell Anemia, and many other diseases specifically an immune deficiency such as Patrick's IgA deficiency that is incurable otherwise. Stem cells are like heat seeking missiles within the body and search for damaged tissues and repair them. The uses are limitless and the potential for this therapy to help Patrick is endless.
Maybe he would walk unattended, maybe he could eat non-medical food, maybe he could say a few simple words or actually make eye contact. We have no idea but the results with other individuals have all been positive and I refuse to let this opportunity slip away, The therapy costs $18,000 and the travel expenses are around $2,000.00 leaving us with a $20,000.00 plus or minus expense.
The dinner dance paid off old bills and left us with the $2000.00 for travel but we are faced with raising the $18,000.00. Much of this will be raised in June at his annual golf outing but we need to provide the doctor with a sizeable down payment when we land in Ecuador on April 18th. Yes April 18th!!!!! I am scared to death, excited, hopeful, but I know this is the right choice to make. Patrick and I will be traveling alone due to cost, school, etc. so please keep us in your prayers. I know the charity ball is next week so if you could talk to the members of both the club and motorcycle club maybe a small amount of funds could be raised to make a dent in this expense. Patrick deserves this chance and has needed that little nudge for so long. When he says "MOM' I cry because I know he wants to say so much more. He constantly moves his jaw talking with no words.
We have been so lucky to have so many wonderful friends that have kept him going all these years. My dream is just to get him one step further than we have so far; get him to communicate enough for him to always be happy. So on to Ecuador it is for me and Patrick!!! And I thank you and all our other wonderful friends in advance and in the past for all the support both financial and emotional. Attached is a save the date card for Patrick's golf outing and the brochure will follow which can be distributed to everyone wishing to golf or sponsor a hole. The web site for our destination is http://www.ascaac.com/ for those that are interested in viewing. Thanks again for being a great friend and Patrick supporter.
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